- Services:
- Advice and support
We offer free confidential information, emotional support, practical advice and guidance to anyone affected by Spinal Muscular Atrophy who is living in the UK.
We also offer resources for health, education and social care professionals.
Our helpline is open
Monday - Thursday: 9.00am to 3.30pmFriday: 9.00am - 1.00pm (Closed on public holidays)
and we're happy to call you back.
We also have a small Outreach Support Services team who’ve been supporting families with children and young people who have SMA, adults who have SMA, and those who are bereaved by SMA, for many years. We do this by email, phone, text and outreach home-visiting anywhere in the UK, it doesn’t matter where you live.
Tell us about any updates to this information using our online form
The directory is impartial - the council does not endorse or recommend any organisation listed.