PANS/PANDAS UK Charity

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.One estimate suggests that up to 1 in 200 children suffer from this condition.Resources for parents including diagnostic criteria and details of local support groups.Resources for Medical professionalsResources for teachers and SchoolsTeacher training packageFacebook group for parents/caregiversFacebook group for Young People age 12-17 with the condition.Facebook group for AdultsLinks to further ResearchAdvocacy and support from the charityChildren aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated.All of Leicestershire covered. We provide support via our Facebook group PANS PANDAS UK.For educators:https://www.panspandasuk.org/for-educators